His stroke. Her book.

In good company at Winstone’s bookshop His stroke. Her book. Or, why I haven’t posted anything for two months This edition of our blog is running late, for a very exciting reason.  Sorry for the delay.  Terry has had a couple of those protracted low-energy phases which will be familiar to many strokees.  Looking back … Read more

Don’t try this at home

Before Don’t try this at home! Going tapless BS (before stroke) I did most of the DIY and household maintenance, including plumbing. Since stroke, I’ve tried to farm out jobs to professionals, with fairly dismal results. Kitchen re-fit, decorating, other plumbing jobs needed to be put right or redone. Somehow, with one hand, I’ve managed … Read more

Travelling Hopefully

Travelling Hopefully The emphasis of this blog is the long haul, so we’re reaching out to people who may be several years post-stroke. When you set off, the only way is forwards. Over the years, some problems diminish or resolve, whilst others remain persistent and sooner or later, you’re bound to question whether you were … Read more

In search of the lost chord

In search of the lost chord Playing an instrument after stroke This post is quite a long rambling one, but it’s of special interest to instrumentalists. We would love to hear from musicians or anyone who has recovered or improved movement and fine motor skills. Pre-Stroke, my major hobby, apart from the things I pretended … Read more

Why me?

WHY ME? Nine lives? Don’t try this at home. After the initial shock and trauma of my haemorrhagic stroke had started to subside, I desperately wanted to know why it had happened.  I asked anyone who might know.   The general view, shared by the senior stroke nurses at the General Hospital, was it was … Read more

Progress

Looking at the Hockney exhibition, Salts Mill Progress report Goals and Gains Direction of travel   2013 I left hospital  with all sorts of equipment and gadgets to help with some of the tasks that, previously, were accomplished naturally and unaided. I also had my end of term report. (Discharge Statement.) This listed things the … Read more

Looking Back on Stroke Awareness Month 2020

Move that Qi Looking back on Stroke Awareness Month – May 2020 I’m a notorious Pollyanna, but right now, I’m checking our privilege. Make May Purple, they said. Well, it may have been purple somewhere, but of course, we haven’t been out and about to see the evidence. Apart from memes.  There’s a poetic irony … Read more

Home after hospital

Home from Hospital Early Supported Discharge Reflections on a tricky transition Discharge from hospital is probably something that sticks in the memory for most people.  Terry had been in hospital for four weeks when he was allowed home under the local Early Supported Discharge scheme. Panic and delight in equal measure! We’ve since met other … Read more

Touch – Improvements, 2013-2020

Touch Improvements over time – 2013-2020 When we started this blog we subtitled it “then and now”. So far, we’ve focused on the first few weeks. From now on we’ll dodge around a bit and update to stop you getting bored. Regaining hand function has proved a big challenge. 2013 – Terry At times it’s … Read more

Sign here

Sign here Reflections on signing up your next of kin for a clinical trial When you’re watching someone being ill, there are things that fuel your energy  and there are things that deplete it. I’m going to add my two pennyworth on the AVERT trial which Terry mentioned in his last post (Staying Alive), which … Read more